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The following are organizations and/or websites dedicated to providing information and education surrounding Chiari Malformation and other chronic conditions. These organizations are dedicated to research, education, awareness, and/or support. They are listed in Alphabetical order without any preference or prejudice. Listing these organizations is not a recommendation or referral in any regard for seeking treatment or consultation or support for treatment.
American Association of Neurological Surgeons
American Syringomyelia & Chiari Alliance Project
Chiari Connection International
Chiari & Syringomyelia Foundation
National Institute of Neurological Disorders And Stroke
National Organization for Rare Diseases
World Arnold Chiari Malformation Association