Compassionate Marijuana Use

Hello Dear readers!

I am so sorry for being MIA, but as most of you know, Chiari and EDS can be horribly unpredictable. I haven’t slept or really gotten any rest in about a week. Haven’t been able to eat much due to nausea ect. I did want to share something that I and I know many of you in the Chiari/EDS community have been championing for, it looks like the state of Pennsylvania is going to pass the Compassionate Marijuana Use bill.

Now, While Chiari/EDS aren’t specified on the bill, traumatic brain injury and chronic pain ARE included, which is huge! At the same time, we can submit a petition starting in July 2017 to have other conditions included. This is something I will be working very hard on in the next year and a half to make sure all of us who need treatment can get it, and hopefully expand the bill into other states.

Here is the bill.

Its a little difficult to read through, but you get the idea.

What do you think about this idea readers? Are you on board with marijuana use for pain control?

I am interested to see what the community thinks about this topic!

 

Look forward to hearing from you community!

 

Stay Positive!

 

Chrisitna

Chiari Senate Resolution Passed!

Chiari Senate Resolution Passed!

Hi everyone!

I am sorry I haven’t been around lately. There has been a lot going on around the Thompson Household, but I do have some good news to share! The 2015 Pennsylvania Chiari Resolution passed! Thank you to all involved, and a big thanks to the following Senators and their staff:

INTRODUCED BY AUMENT, WOZNIAK, BARTOLOTTA, EICHELBERGER, SABATINA, TEPLITZ, FONTANA, BREWSTER, GORDNER, TARTAGLIONE, WHITE, COSTA, DINNIMAN, SCAVELLO, BOSCOLA, RAFFERTY AND VULAKOVICH

If you would like to have a Chiari Resolution passed in your state, simply contact your local representative. They are often very kind and willing to help. Feel free to send them the link back to my site, or to the resolution itself.

Resolution 2015

Resolution 2014

Senator Aument Chiari Memo

INTRODUCED AND ADOPTED, SEPTEMBER 18, 2015 A RESOLUTION
Designating the month of September 2015 as “Chiari Malformations Awareness Month” in Pennsylvania.

WHEREAS, Chiari malformations (CMs) are structural defects in the cerebellum which affect nearly 500,000 Americans; and

WHEREAS, CMs cause the cerebellum to descend out of the skull and herniate into the spinal column, putting pressure on both the brain and spine and blocking the flow of cerebrospinal fluid; and

WHEREAS, CMs can cause a wide range of symptoms, including severe and persistent headaches, loss of motor functions, extreme pain in the neck and shoulders, nerve damage, balance problems, weakness and numbness in the hands and feet, sleep apnea, trouble swallowing and other serious health problems; and

WHEREAS, There is no known cure for CMs, and many patients must undergo extensive surgical procedures to ease the pressure and slow the progression of symptoms; and

WHEREAS, The severity of symptoms can vary dramatically from person to person, regardless of the amount of descent or herniation of the cerebellum; and

WHEREAS, The disease is frequently misdiagnosed and misunderstood and the cause and risk factors of the condition are not fully understood; and

WHEREAS, Additional research, awareness and understanding of this condition are vital to ensure the best possible outcome for patients; therefore be it

RESOLVED, That the Senate designate the month of September 2015 as “Chiari Malformations Awareness Month” in Pennsylvania and recognize the importance of understanding the impact of this disease.

Pennsylvania Senate Chiari Resolution

Pennsylvania Senate Chiari Resolution

Hello Everyone!

Last year, my husband worked closely with now retired Senator Brubaker to get a resolution passed in Pennsylvania to recognize September as Chiari Awareness Month. This year, Senator Aument and his staff have been kind enough to introduce our resolution into the Senate. Please take some time to visit Senator Aument’s Facebook page to thank him and his staff for the work they are doing to help us spread awareness.

Stay positive!

 

 

Here is the text of last years resolution.

 

PRINTER’S NO. 2341
THE GENERAL ASSEMBLY OF PENNSYLVANIA
SENATE RESOLUTION
No. 456 Session of 2014
INTRODUCED BY BRUBAKER, WOZNIAK, GREENLEAF, ERICKSON, SCARNATI, DINNIMAN, KITCHEN, FONTANA, STACK, FERLO, SOLOBAY, RAFFERTY, ALLOWAY, SCHWANK, PILEGGI, HUGHES AND SMITH

SEPTEMBER 24, 2014
INTRODUCED AND ADOPTED, SEPTEMBER 24, 2014 A RESOLUTION

Designating the month of September 2014 as “Chiari Malformations Awareness Month” in Pennsylvania.

WHEREAS, Chiari malformations (CMs) are structural defects in
the cerebellum which affect nearly 500,000 Americans; and

WHEREAS, CMs cause the cerebellum to descend out of the skull
and herniate into the spinal column, putting pressure on both
the brain and spine and blocking the flow of cerebrospinal
fluid; and

WHEREAS, CMs can cause a wide range of symptoms, including
severe and persistent headaches, loss of motor functions,
extreme pain in the neck and shoulders, nerve damage, balance
problems, weakness and numbness in the hands and feet, sleep
apnea, trouble swallowing and other serious health problems; and

WHEREAS, There is no known cure for CMs, and many patients
must undergo extensive surgical procedures to ease the pressure
and slow the progression of symptoms; and

WHEREAS, The severity of symptoms can vary dramatically from
person to person, regardless of the amount of descent or
herniation of the cerebellum; and

WHEREAS, The disease is frequently misdiagnosed and
misunderstood and the cause and risk factors of the condition
are not fully understood; and

WHEREAS, Additional research, awareness and understanding of
this condition are vital to ensure the best possible outcome for
patients; therefore be it

RESOLVED, That the Senate designate the month of September
2014 as “Chiari Malformations Awareness Month” in Pennsylvania
and recognize the importance of understanding the impact of this
disease.