Hello Everyone!

May sure went by quickly! Its finally starting to warm up here in Pennsylvania, and thank goodness. The cold weather always takes its toll on me.

As many of you know, I had my surgery the day before my 30th birthday, May 29,2013. This year marks four years since surgery! Fortunately for me, my MRIs have come back clear every six months for the last four years. Chiari is progressive. I will always have to be monitored, but, starting next year I will be able to switch to yearly MRIs. I’m so excited! This may not seem like a big deal to some, but it means a lot to me.

I have had a love/hate relationship with my surgery since the day I found out I was having it. Yes it saved my life, but it also changed it forever. The pain, heartache and misery it has caused makes me wonder sometimes if it was worth it. Then I realize, I am here. I am still alive, still walking. I am grateful for every single day I have had since May 29, 2013 no matter how hard or painful, because it is one more day I shouldn’t have had.

Whatever life brings you, be grateful for it. Pain, joy, misery, ecstasy, heartbreak, love, relish it all. Live in the moment. Feel them all because you can.


I wish you many happy days dear readers. Whatever lies ahead of you, face it with courage and a good heart. Know that you matter, pain will pass, and you are never alone.


Much love