Hello my dear readers.
I am truly sorry for my absence lately. There has been a lot going on in my world. Lifewithchiari.com has partnered with Bearable Bears to help bring a little stuffed happiness into children’s lives all over the world. I encourage you to stop by their page and sponsor a child if possible. There are a lot of little ones out there who need our help!
As for my lateness in posting…
I have been struggling with getting my pain under control. It is hard for someone who doesn’t live with a chronic/degenerative condition to understand what it is like to live in horrible, crippling pain everyday. This is a great article to help understand what its like. Everywhere you turn, people think you are faking, seeking sympathy or attention, your a drug addict, lazy ect. The crazy part is, if I actually WAS a drug addict, I would have no problem getting the help I need.
There is such a stigma attached to people who live with pain as as daily fact of life. (or with any “invisible illness” for that matter.) We even get judged by the people that should be helping us the most. The medical community. I have struggled with ignorance and outright meanness from doctors and others in the medical community. That isn’t to say all doctors are that way, but there is such a need for education, and for us as a chronic pain community to stand up for ourselves. Who knows us better than us?
On that note, most of you know my struggle with pain management. I saw a new doctor today who is starting me on four new medications: Nucynta, Celebrex, Neurontin, and Zanaflex. The doctor didn’t know about my conditions, but he was more than willing to listen to me, and said he is going to do everything he can to help me. I will also be starting aquatherapy, so I will keep you all updated on how that goes!
Also, we have teamed up with Chiari Gear to make Life With Chiari t-shirts! All proceeds from the t-shirt sales will go to Chiari Malformation awareness and research. So be on the look out for those with in the coming months!
Much love readers!