Gear! Gear!

Hi all!

The day you have been waiting for is finally here! As I previously told you about, life with chiari has teamed up with the extremely talented team at Chiari Gear to bring you LWC tees.  The design will be white on a background shirt color of your choosing (like the featured picture above.)

We are so pleased to have been asked to support! Our primary goal is to offer quality, affordable merchandise so that more people can spread awareness. Combined with the information and education found on, we are making even a bigger impact on the world!

Please use Coupon code: LWC for $3 off your order.

How it works:
We will be taking orders for T-shirts, V-neck T-shirts, Long Sleeves, Sweatshirts and Hoodies through 6/15. Once orders have been received, we will print the design to match the number of items orders. The process to print  and ship a new design is approximately 15 business days. So, you will be receiving your order the first week in July.

Every order is shipped directly to you and includes awareness cards so that you can keep spreading awareness long after someone sees your design.

As always, please let us know if you have any questions or concerns! And, thank you for spreading awareness!!

Even if you can’t buy a shirt, please share the link. 100% of the proceeds for shirts sold go to Chiari Awareness and research. As always, thank you all for your love and support in helping to find a cure for Chiari. 


Love and hope!


Chronic Illness Series: Chronic Pain

Chronic Illness Series: Chronic Pain

Hello my dear readers.

I am truly sorry for my absence lately. There has been a lot going on in my world. has partnered with Bearable Bears to help bring a little stuffed happiness into children’s lives all over the world. I encourage you to stop by their page and sponsor a child if possible. There are a lot of little ones out there who need our help!

As for my lateness in posting…

I have been struggling with getting my pain under control. It is hard for someone who doesn’t live with a chronic/degenerative condition to understand what it is like to live in horrible, crippling pain everyday. This is a great article to help understand what its like. Everywhere you turn, people think you are faking, seeking sympathy or attention, your a drug addict, lazy ect. The crazy part is, if I actually WAS a drug addict, I would have no problem getting the help I need.

There is such a stigma attached to people who live with pain as as daily fact of life. (or with any “invisible illness” for that matter.) We even get judged by the people that should be helping us the most. The medical community. I have struggled with ignorance and outright meanness from doctors and others in the medical community. That isn’t to say all doctors are that way, but there is such a need for education, and for us as a chronic pain community to stand up for ourselves. Who knows us better than us?

On that note, most of you know my struggle with pain management. I saw a new doctor today who is starting me on four new medications:  NucyntaCelebrexNeurontin, and Zanaflex. The doctor didn’t know about my conditions, but he was more than willing to listen to me, and said he is going to do everything he can to help me. I will also be starting aquatherapy, so I will keep you all updated on how that goes!


Also, we have teamed up with Chiari Gear to make Life With Chiari t-shirts! All proceeds from the t-shirt sales will go to Chiari Malformation awareness and research. So be on the look out for those with in the coming months!


Much love readers!