Source

 

  • Fibromyalgia
  • Chronic fatigue, often diagnosed as CFS/ME
  • Chronic Pain of ALL kinds, including RSD/CRPS, arachnoiditis, neuropathies, radiculopathy, neuralgia, fibromyalgia, etc. often invisible on scans
  • MCAD (Mastocytosis or the newly recognized Mast Cell Activation Syndrome aka MCAS – ICD-10 code to come soon hopefully in 2014)
  • Fibromyscular dysplasia (deformity of the arteries, especially leading to the kidneys)
  • Autism Spectrum Disorders (all levels) and related disorders (OCD, ADHD, SPD)
  • Mood disorders, especially anxiety and depression (likely organic in origin and/or secondary with ASD)
  • Thyroid issues (high and low, often auto-immune despite normal TSH “levels”)
  • MS and other auto-immune disorders (RA, Sjogren’s, Lupus, Ankylosing Spondylitis, OA, more)
  • Arthritis of all kinds, especially early onset Oestoarthritis in the spine, neck and hands, but RA common also (really AI also)
  • Irritable Bowel Syndrome (IBS) & proclivity toward constipation, but with quick flips to diarrhea (likely food allergies/MCAD)
  • Incontinence at any age (often from occult tethered cord and/or MCAD or allergy induced)
  • Frequent (seemingly idiopathic) nausea and vomiting (may be from impinged vagus nerve/MCAD/hiatal hernia/gastroparesis/Chiari)
  • Dysautonomia of all kinds, most notably poor temperature and BP regulation (high or low, see POTS below)
  • Raynaud’s phenomon (blood vessel constriction from cold, stress) pronounced “ray-noe’s”) – a form of dysautonomia
  • POTS (Postural Orthostatic Tachycardia Syndrome) – a subset of dysautonomia involving BP drops and syncope (fainting)
  • Hyperadrenergic POTS (aka HyperPOTS) – a subtype of POTS involving more variable BP and adrenaline responses
  • NMH (Neurally Mediated Hypotension) – another form of dysautonomia affecting BP
  • Livedo Reticularis (purplish/white “mottling” on skin surface from likely small capillary spasming)
  • Frequent joint dislocations and subluxations (partial dislocations) or being so-called “double-jointed
  • Mitochondrial disorders and deficiencies
  • Kidney trouble including diabetes insipidus
  • Diabetes miellitus and Metabolic X syndrome
  • Sensory Processing Disorders
  • Tinnitus (ringing in the ears)
  • Insomnia (trouble falling and staying asleep, multiple causes in the EDS patient including pain and hyperadrenergia)
  • Sleep apnea, both obstructive airway issues and Central Nervous System (CNS) Apnea (neurologic in origin requiring a sort of breathing “pace maker”)
  • Cranio-cervical settling (which may cause the CNS Apnea) and attendant neuropathic issues and glaucoma
  • Hypotonia (unusually weak muscles despite “training”) sometimes presenting as “floppy babies”
  • Syncope and pre-syncope (fainting and near fainting) and unusually low BP
  • Dizzyness (with or without syncope)
  • Common Variable Immune Deficiency (CVID) of all kinds leaving us prone to frequent & worsening recurrent infections of all kinds, especially respiratory & UTI’s
  • Interstitial cystitis
  • LymphedemaEdema and angioedema (the latter comes with MCAD triggering usually)
  • Lipoedema (not the same as lymphedema, also spelled “lipedema” in US) an adipose (fat) tissue disorder causing unavoidable weight gain
  • Endometriosis
  • Tendonitis and bursitis of all kinds (aka “soft tissue rheumatism”)
  • Keratoconus or thinning /”pointy” corneas
  • Uveitis (inflammation of hte uvea of the eye, common with ankylosing spondylitis)
  • Varicose and spider veins, often early onset
  • Phlebitis
  • Migraines and headaches of ALL kinds and durations, (often driven by hydrocephalus from MCAD)
  • Food and drug allergies and sensitivities with a lot of paradoxic and unexpected super sensitive reactions
  • Bleeding disorders including Von Willebrand’s
  • Strokes
  • Mitral valve prolapse
  • Aneurysms of all kinds, anywhere
  • Easy bruising often from no apparent cause or injury
  • GERD (weak hiatal sphincters and MCAD can contribute here – the stomach produces acid in resopnse to histamine from food reactions)
  • Gastroparesis (slow stomach emptying) and dysmotility (poor digestive movement) beyond just constipation and IBS
  • Chiari malformation, including occult (hidden) Chiari aka “Chiari Zero” formation (“saggy” hind brain, often protruding through the back skull, but not always)
  • Tethered cord
  • Syringomyelia or “syrinx formation” in the spinal cord (may be caused by long term hydrocephalus)
  • Spondylolysthesis, spondylolisis (misalignment of the spinal vertebrae in various directions – front -to-back, side-to-side)
  • Cranial cervical instability, esp C1-C2 “owl turns” and “bobble-head” issues (trouble keeping head on neck, literally, with resulting neurologic issues)
  • Thoracic outlet syndrome, brachial outlet syndrome
  • Seizure disorders and epilepsy
  • Fallen arches (pes planus)
  • Sciatica
  • Bilateral hip dysplasia (ability to “pop” – aka sublux – hips out and back in easily, which should be avoided!)
  • Cerebral Spinal Fluid (CSF) leaks including CSF rhinorrhea, CSF otorrhea (CSF leaks out nose and ears) or anywhere along the dura (lining of spinal column & brain)
  • Celiac disease and all forms of gluten sensitivity
  • Malabsorption and malnutrition and nutritional deficiencies despite diet and even supplementation sometimes. (Poor absorbption).
  • Electrolyte imbalances (often low potassium)
  • Osteopoenia (low bone density) and osteoporosis (brittle bones), often early onset
  • Scoliosis (deformity of spinal curve) of all kinds including kyphosis (aka “roundback”, forward bent spine)
  • Hiatal hernia (stomach to esophagus sphincter) and all other forms of hernias just about anywhere (inguinal, duodenal, abdominal, etc.)
  • Costochondritis (pain at front rib attachment point to sternum)
  • Chondromalacia (cartilage loss) of all kinds, especially patellae (loss of cartilage in the knees, but can occur elsewhere, e.g. hips)
  • Frozen shoulder
  • Petechiae (dark purplish spots, essentially flat blood blisters under the skin, common in those with MCAD with high heparin levels)
  • Metal and other environmental allergies, especially nickel sensitivity (ELISA testing often helpful, pre-test all implant materials)
  • Diastasis recti, (splitting of abdominal wall along the midline) even in males and unpregnant females
  • Striae aka “stretch marks” even in males and young (prepubescent) females (i.e. not always associated with pregnancy!)
  • Strabismus (crossed eyes) or wandering eyes from likely weak eye ligaments
  • Bruxism (jaw clenching, tooth grinding)
  • TMJ pain and issues, subluxations and dislocations (Temporo-mandibular joint syndrome, jaw alignment trouble)
  • Restless Leg Syndrome (RLS) and leg cramps (often eased by increased magnesium)
  • Neuromas in the feet
  • Plantar Fasciitis
  • Chronically low Vitamin D and B12 levels (caution urged for those with MTHFR mutations with the latter, may need a different form of Vit B)
  • Weak or crowded teeth, many need early or partial dentures
  • Urticaria (hives) and Urticaria Pigmentosa (persistant hive-like patches, part of MCAD above)
  • Hair loss early, and even in women, especially those with signs of MCAD or iron imbalances
  • Deviated septum (misaligned nasal cartilage)
  • Trouble swallowing & choking issues, often neuropathic in origin from CCI, sometimes due to floppy laryngial tissues
  • Esophageal spasms (can extend to anywhere along GI tract also)
  • Skin tears or rips, trouble suturing, would dehiscence (trouble healing post surgery, especially soft inner tissues)
  • Liver problems, including fatty liver and lesions, enlarged liver
  • Enlarged gallbladder & spleen, appendicitis (may be MCAD driven)
  • Vocal cord dysfunction
  • Hearing loss from a variety of causes, some bio-mechanical, others neurologic
  • Diverticulitis and diverticulosis
  • Crohn’s and colitis
  • Leaky gut syndrome
  • Retinal detachment and tears (rips)
  • Keratoconus (“pointy”, droopy corneas)
  •  Dry eyes and blepharitis (bacterial eyelid infections), as well as retinal tears and more