I am sorry I haven’t been around lately. There has been a lot going on around the Thompson Household, but I do have some good news to share! The 2015 Pennsylvania Chiari Resolution passed! Thank you to all involved, and a big thanks to the following Senators and their staff:
INTRODUCED BY AUMENT, WOZNIAK, BARTOLOTTA, EICHELBERGER, SABATINA, TEPLITZ, FONTANA, BREWSTER, GORDNER, TARTAGLIONE, WHITE, COSTA, DINNIMAN, SCAVELLO, BOSCOLA, RAFFERTY AND VULAKOVICH
If you would like to have a Chiari Resolution passed in your state, simply contact your local representative. They are often very kind and willing to help. Feel free to send them the link back to my site, or to the resolution itself.
INTRODUCED AND ADOPTED, SEPTEMBER 18, 2015 A RESOLUTION
Designating the month of September 2015 as “Chiari Malformations Awareness Month” in Pennsylvania.
WHEREAS, Chiari malformations (CMs) are structural defects in the cerebellum which affect nearly 500,000 Americans; and
WHEREAS, CMs cause the cerebellum to descend out of the skull and herniate into the spinal column, putting pressure on both the brain and spine and blocking the flow of cerebrospinal fluid; and
WHEREAS, CMs can cause a wide range of symptoms, including severe and persistent headaches, loss of motor functions, extreme pain in the neck and shoulders, nerve damage, balance problems, weakness and numbness in the hands and feet, sleep apnea, trouble swallowing and other serious health problems; and
WHEREAS, There is no known cure for CMs, and many patients must undergo extensive surgical procedures to ease the pressure and slow the progression of symptoms; and
WHEREAS, The severity of symptoms can vary dramatically from person to person, regardless of the amount of descent or herniation of the cerebellum; and
WHEREAS, The disease is frequently misdiagnosed and misunderstood and the cause and risk factors of the condition are not fully understood; and
WHEREAS, Additional research, awareness and understanding of this condition are vital to ensure the best possible outcome for patients; therefore be it
RESOLVED, That the Senate designate the month of September 2015 as “Chiari Malformations Awareness Month” in Pennsylvania and recognize the importance of understanding the impact of this disease.