Hello Everyone!

Last year, my husband worked closely with now retired Senator Brubaker to get a resolution passed in Pennsylvania to recognize September as Chiari Awareness Month. This year, Senator Aument and his staff have been kind enough to introduce our resolution into the Senate. Please take some time to visit Senator Aument’s Facebook page to thank him and his staff for the work they are doing to help us spread awareness.

Stay positive!

 

 

Here is the text of last years resolution.

 

PRINTER’S NO. 2341
THE GENERAL ASSEMBLY OF PENNSYLVANIA
SENATE RESOLUTION
No. 456 Session of 2014
INTRODUCED BY BRUBAKER, WOZNIAK, GREENLEAF, ERICKSON, SCARNATI, DINNIMAN, KITCHEN, FONTANA, STACK, FERLO, SOLOBAY, RAFFERTY, ALLOWAY, SCHWANK, PILEGGI, HUGHES AND SMITH

SEPTEMBER 24, 2014
INTRODUCED AND ADOPTED, SEPTEMBER 24, 2014 A RESOLUTION

Designating the month of September 2014 as “Chiari Malformations Awareness Month” in Pennsylvania.

WHEREAS, Chiari malformations (CMs) are structural defects in
the cerebellum which affect nearly 500,000 Americans; and

WHEREAS, CMs cause the cerebellum to descend out of the skull
and herniate into the spinal column, putting pressure on both
the brain and spine and blocking the flow of cerebrospinal
fluid; and

WHEREAS, CMs can cause a wide range of symptoms, including
severe and persistent headaches, loss of motor functions,
extreme pain in the neck and shoulders, nerve damage, balance
problems, weakness and numbness in the hands and feet, sleep
apnea, trouble swallowing and other serious health problems; and

WHEREAS, There is no known cure for CMs, and many patients
must undergo extensive surgical procedures to ease the pressure
and slow the progression of symptoms; and

WHEREAS, The severity of symptoms can vary dramatically from
person to person, regardless of the amount of descent or
herniation of the cerebellum; and

WHEREAS, The disease is frequently misdiagnosed and
misunderstood and the cause and risk factors of the condition
are not fully understood; and

WHEREAS, Additional research, awareness and understanding of
this condition are vital to ensure the best possible outcome for
patients; therefore be it

RESOLVED, That the Senate designate the month of September
2014 as “Chiari Malformations Awareness Month” in Pennsylvania
and recognize the importance of understanding the impact of this
disease.